The study reported by Kapoor et al in this month’s European Journal of Human Genetics explains the dichotomy between the accelerated pace of discovery and the slow uptake of pharmacogenomics in standard clinical care through a SWOT analysis. A glass can be perceived as being half-full or half-empty. Continue reading
David Haerry is a patients’ advocate. He is a member of the European AIDS Treatment Group (EATG). David has been involved in HIV drug development for many years and has specific interests in the areas of Personalised Medicine, Risk Communication and Doctor/Patient Communication, Pharmacovigilance, Observational Studies, Biomedical Prevention and HIV Eradication Research.
The 17th Golden Helix Pharmacogenomics Day was successfully organized in Rotterdam, the Netherlands May 27th, 2016 by the Golden Helix Foundation and the Erasmus University Medical Center. Overall, the conference was attended by 164 participants from over 10 countries from Europe and the United States and was under the auspices of several national and international organizations, such as the Dutch Royal Pharmacists Association, the Genomic Medicine Alliance, the International Federation of Clinical Chemistry, and others.
We are excited to report that the U-PGx proposal PHC-24-2015 – Piloting personalised medicine in health and care systems has been favourably evaluated by the Commission in stage 2 evaluations. The project will have a funding volume of 14,9 million Euros and a duration of 60 months. The grant agreement is expected to be finalised within the next 3 months.
We want to thank all U-PGx consortium members and advisors for their help in turning the U-PGx vision into a reality and are looking forward to our future collaboration!
Attendance and reservations
Meeting agenda (March 22)
8:45 – 9:00 Arrival at meeting room (CeMSIIS, Spitalgasse 23, BT88, third floor)
9:00 – 9:20 Welcome at Medical University of Vienna, introduction, overview of goals and schedule of the meeting, overview of current state of the proposal
9:20 – 9:50: Presentation and discussions of decisions made regarding clinical study design
9:50 – 10:20 Presentation and discussion of decisions made regarding genotyping technology and logistics
(10 minute break)
10:30 – 11:00: Presentation and discussion of decisions made regarding clinical guidelines (translations, quality control, etc.)
11:00 – 12:00 Discussion on PGx decision support implementation strategies at each site with special focus on IT considerations
12:00 – 13:00 Lunch at nearby restaurant (meeting room will be locked)
13:00 – 13:30: Time allocated to read up-to-date proposal text individually
13:30 – 14:00: Work on work packages individually or in break-out groups
14:00 – 15:20: Going through and discussing the proposal document from start to finish with the whole group
- 14:00 – 14:20: General/introductory text
- 14:20 – 15:30 Discussion of each work package, including estimation of person hours, who is collaborating in which work package
(10 minute break)
15:40 – 16:00: Summary of progress made, to-do items for each participant, summary of required additional information (including administrative and financial data), timeline until proposal submission on April 21.
16:00 End of meeting (room will remain open until 17:00)
How to get there & around
Vienna International Airport is located 18 km from the Vienna city center. The most hassle-free way for getting to your hotel or the meeting venue is by taking a taxi, which should cost around 25 Euros per fare.
Public transport in Vienna is very good, and if you are just moving around in the inner city, walking should be fine as well. For planning travel by public transport in and around Vienna, you can use this route planning tool: http://www.wienerlinien.at/eportal2/ep/tab.do?tabId=0 (including to-from airport, in German ‘Flughafen Wien’). See the Lonely Planet Vienna guide for more detailed information.
If you want to have a glimpse of Vienna but have only limited time, walking around the inner city and visiting historic places, museums (e.g., the Leopold Museum) and parks is probably your best bet.
When: Sunday, March 22, 9:00 – 16:00
Where: CeMSIIS, Medical University of Vienna, 3rd floor of building BT 88, Spitalgasse 23, 1090 Vienna
The meeting will start at 9 AM on Sunday, March 22. It will take place at the Center for Medical Statistics, Informatics and Intelligent Systems (CeMSIIS) at the Medical University of Vienna. The meeting venue is in walking distance from Hotel Boltzmann.
To find the meeting room, enter the MedUni Campus at Spitalgasse 23 (where the trams 5 and 33 stop – the station is called “Lazarettgasse”). Enter building BT 88, which is located to the right of the first building you see when first entering. Take the elevator to the 3rd floor.
Contact Matthias in case you need assistance with finding your way: +43 699 811 68 028. Please note that there is hardly any personnel around on a Sunday, so all organisation is done by Matthias personally.
Where: Hotel Boltzmann, Boltzmanngasse 8, 1090 Vienna
We have reserved rooms at Hotel Boltzmann. Henk-Jan will kindly sponsor Hotel costs.
When: Saturday, March 21, 20:00 – 22:00
Where: Café Griensteidl, Michaelerplatz 2, 1010 Vienna.
We have reserved seats for a casual get-together at a classical Viennese Café in the city center, Café Griensteidl, for 8 PM on Saturday, March 21. You can order food (including vegetarian dishes) a la carte, Henk-Jan will kindly sponsor the event.
The Café is 1,5 km away from your hotel. Walking is possible, but you might want to speed things up by taking two tramway stops (from Sensengasse to Schottentor) and walking the remaining distance.